Resources for professionals
Rare Endocrine Brain Tumour Guidelines
Craniopharyngioma
Success charity founder, Dr Helen Spoudeas was chair of the project board for a new publication, Rare Endocrine Craniopharyngioma Tumour Guidelines, published by the Children’s Cancer and Leukaemia Group, and which has been endorsed by The Royal College of Paediatrics and Child Health.
This guideline is intended to be a reference document for clinicians presented with the challenge of managing children and young adult patients (CYP) with craniopharyngioma up to the age of 19 years. It addresses the clinical assessment, diagnosis, treatment and follow-up of affected patients, informed by information gathered from peer reviewed scientific reports identified through a robust literature search.
